Assessment of Quality of Life of Parents of Children with Osteogenesis Imperfecta
Journal Title: Advances in Clinical and Experimental Medicine - Year 2012, Vol 21, Issue 1
Abstract
[b]Objectives.[/b] The aim of the work was an objective assessment of the quality of life of parents of children with osteogenesis imperfecta (OI) and of its determinant factors. [b]Material and Methods.[/b] The survey answers of 25 parents were analyzed and contained demographic parameters, socioeconomic status information, quality of life of responses and type of support they have been receiving. In order to assess the effects of this children’s disease on the quality of life of the parents, families were divided into two groups depending on the OI severity: group M – mild (type I and IV OI), group S – severe (type III OI). The objective of the work was carried out based on the WHOQOL-BREF quality of life questionnaire and measures of family status: education degree based on the International Standard Classification of Education (ISCED), a subjective assessment of the family’s wealth (Perceived Family Wealth, PFW), and the family’s financial resources (Family Affluence Scale, FAS). [b]Results.[/b] 56% of respondents assessed their global quality of life (Quality of Life, QL) as good, whereas 8% answered poor. Perception of general health status was similar. Life domains assessed in the WHOQOL-BREF questionnaire received the following mean values on a scale from 4 to 20 points: physical – 12.2 ± 1.2, psychological – 15.04 ± 2.2, environmental – 13.32 ± 2, social relationships – 14.28 ± 1.5. In the severe OI group, the environmental domain was assessed as worse than in the mild OI group and this assessment was statistically significant, despite the fact that the group of families with severe cases of OI received more support from the appropriate institutions. Indicators of socioeconomic status did not affect the respondents’ assessment of their global quality of life. [b]Conclusions. [/b]In the tested group of families, the child’s disease did not affect either the global quality of life assessment or health of the respondents or their quality of life in terms of physical and mental status and social relationships. The parents of children with severe OI assessed the life domain associated with the environment they live in as worse than the parents of children with mild OI. The global quality of life assessment of the respondents did not depend on the family’s socioeconomic status and on the help they have been receiving with regard to care for the child.
Authors and Affiliations
Anna Szczepaniak-Kubat, Olga Kurnatowska, Elżbieta Jakubowska-Pietkiewicz, Danuta Chlebna-Sokół
Keywords
Related Articles
- EP ID EP161130
- DOI -
- Views 106
- Downloads 0
The Effect of Exhaustive Exercise on Oxidative Stress Generation and Antioxidant Defense in Guinea Pigs
[b]Abstract [/b] [b]Background.[/b] Exercise induces a multitude of physiological and biochemical changes in blood that can affect its redox status. Exercise causes an increase in oxygen consumption by the whole body an...
Kalcytonina i prokalcytonina u pacjentów z rakiem rdzeniastym tarczycy lub infekcją bakteryjną
[b]Cel pracy.[/b] Ocena przydatności prokalcytoniny jako markera raka rdzeniastego tarczycy. [b]Materiał i metody.[/b] Stężenia kalcytoniny i prokalcytoniny zmierzono u pacjentów z rakiem rdzeniastym tarczycy lub ciężką...
The Influence of Deficiencies of Essential Trace Elements and Vitamins on the Course of Crohn’s Disease
In patients with Crohn’s Disease (CD), malnutrition is frequently observed and is an important complication, frequently associated with nutritional deficiencies, especially vitamins (both water- and fat-soluble) and esse...
Badania in vivo dystrybucji kul krzemionkowych w organizmach szczurów
[b]Wprowadzenie.[/b] Obecnie trwają poszukiwania nośników leków, które po spełnieniu swojej funkcji transportowania substancji aktywnych rozłożą się w organizmie żywym do nietoksycznych produktów. Bada się układy opieraj...
Lectin Receptor Sites During Postnatal Osteogenesis in Guinea Pigs
[b]Background.[/b] Osteoporosis and its complications have become widespread, affecting large portions of the world’s population. More advanced information is needed on these pathologies to expand the possibilities for p...