Assessment of thrombocytopenia symptoms using vignettes. Preliminary report on the development and implementation of a new instrument
Journal Title: JOURNAL OF HEALTH POLICY & OUTCOMES RESEARCH - Year 2015, Vol 8, Issue 2
Abstract
Objective: Our aim was to create a vignette enabling the assessment of the impact of thrombocytopenia symptoms on patients’ quality of life. Methods: The vignettes which we created are focused on thrombocytopenia symptoms which may influence the quality of life of the patients. The vignettes designed in Polish language are to be used by adult patients and children caregivers and to be administered by an interviewer. There are separate vignettes for adult males and females as well as for children caregivers. Each vignette consists of two parts: the objective of the first one is to collect qualitative information about the major health problems related to the thrombocytopenia symptoms in each studied group, the second is related to specific symptoms and aims at measuring the intensity of impact on the quality of life in a quantitative way. Results: We have created the vignettes with special focus on the most frequent thrombocytopenia symptoms and those which are most life threatening. The vignettes describe a hypothetical patient with thrombocytopenia and the symptoms which may impact the quality of life in their daily functioning. In the first part the patients are asked to provide qualitative information in a descriptive way about symptoms influencing their daily functioning or the most threatening ones. The second part is using the Likert scale to assess quantitatively the impact of specific symptoms on patients’ life. Conclusions: The vignettes need to be tested in adult patients with thrombocytopenia and children caregivers in order to allow further comparisons.
Authors and Affiliations
Monika Szkultecka-Dębek, Mariola Drozd, Marta Bem, Nina Kiepurska, Joanna Mazur
Keywords
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- EP ID EP192169
- DOI 10.7365/JHPOR.2015.2.9
- Views 74
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