Barriers to Support for Parents of Children with Cerebral Palsy: A Qualitative Study
Journal Title: مجله تحقیقات کیفی در علوم سلامت - Year 2015, Vol 3, Issue 4
Abstract
Introduction: Parents who have children with cerebral palsy are exposed to the complicated care procedures of the afflicted child. Thus, they need support in order to decrease problems in this respect. However, their needs are not sufficiently met. Therefore, this study was conducted to explore barriers to support for parents of children with cerebral palsy. Method: This qualitative study was conducted in 2011-2012 using content analysis. Purposeful sampling was used to select the participants and continued until data saturation was reached. As a result, 31 participants from among parents of children with cerebral palsy referred to the rehabilitation centers in Tehran, Iran, and experts were selected. The data were collected by in-depth semi-structured interviews and from collected documents, and were analyzed by induction method. Results: Data analysis results revealed three main categories of organizational barriers (poor institutional coordination and communication, and lack of supportive laws with administrative support), professional barriers (poor teamwork, and lack of professional competency), and family barriers. Conclusion: Through understanding parents' needs and complementing supportive laws for parents with afflicted children, coordination among supportive organizations, and planning for comprehensive care along with supportive services packages, policy makers and health services managers can help eliminate parents' problems with regard to caring for their children with cerebral palsy
Authors and Affiliations
Nasrin Alaee, Farahnaz Mohammadi Shahboulaghi, Hamidreza Khankeh, Sima Mohammad Khan Kermanshahi
Keywords
Related Articles
- EP ID EP631895
- DOI -
- Views 156
- Downloads 0
Nurse's specific personal competences in disaster response: a qualitative study
troduction: In recent years, the number of natural and man-made disasters has increased considerably around the world. Iran has a long history of disaster events. Because of nurses’ unique role as professional and volunt...
Azeri Women’s Experiences of Induced Abortion: A Qualitative Research
ntroduction: The Centers for Disease Control and Prevention (CDC) (2009) reported that since women’s experiences of induced abortion are poorly known, examining the effectiveness of current policies and planning for the...
Spiritual Coping against the Desire of Re-using Drug
Introduction: Through recognizing spiritual coping strategies against the desire of re-using drug among ex-addicts, their empowerment in facing the desire of re-using drugs can be improved. This study aimed to explore so...
Nurses’ Turnover Process: A Qualitative Research
Introduction: The shortage of nurses and nursing turnover are major problems in the most countries of the world and Iran accordingly. Nurses' turnover is taken place during a process. The present study aimed to describe...
Experience of Families for Waiting during their Patients’ Surgery: A Qualitative Research
Introduction: A family-centered approach is an important part of the care process for surgical patients and their families. Nursing care is effective only when the family is taken into consideration. Understanding of fam...