Caregiver Burden and Its Associated Factors in Caregivers of Children and Adolescents with Chronic Conditions
Journal Title: International Journal of Community Based Nursing and Midwifery - Year 2019, Vol 7, Issue 4
Abstract
Background: Few studies have been conducted on the burden of care in caregivers of children with chronic illnesses. This study investigated the burden of care and associated factors in first-degree caregivers of children and adolescents with chronic conditions. Methods: A cross-sectional study was conducted from June to September 2017 on 385 first-degree caregivers of children and adolescents with chronic disorders. Data were collected using the Zarit burden inventory which assesses the caregiver burden in physical, psychological, economic, and relational areas and has a total score from 0 to 88. Scores 61-88, 41–60, 20–40, and <20 indicate severe, moderate, mild, and no burden. Data were analyzed using descriptive statistics and Chi-Square, Fisher’s exact tests, t-test, analysis of variance, and multiple regression analysis. Results: The mean age of the caregivers and children were 38.20±8.04 and 8.90±4.90 years, respectively. Also, 33 (8.5%), 135 (35.1%), and 181 (47%) of the caregivers suffered from severe, moderate, and mild burden, and only 9.4% perceived no burden. The mean caregiver burden scores were significantly different in terms of their education (P<0.001), job status (P=0.04), financial status (P<0.001), family size (P<0.001), numbers of children (P<0.001), numbers of children with chronic illnesses (P<0.01), type of supportive resources (P=0.004), and children’s education (P<0.01), type of disease (P<0.001), numbers of diseases (P<0.001), and interval of medical visits (P<0.001). Conclusion: Caregivers of children and adolescents with chronic disease are under pressure. Our study showed a number of factors influencing caregiver burden. Health care providers should plan family-centered care plans to decrease the burden of care in caregivers of children with chronic conditions.
Authors and Affiliations
Mohsen Adib-Hajbaghery, Bahareh Ahmadi
Keywords
Related Articles
- EP ID EP648235
- DOI 10.30476/IJCBNM.2019.73893.0.
- Views 92
- Downloads 0
Agreement between Heart Failure Patients and Their Primary Caregivers on Symptom Assessment
Background: To decrease the readmission rate of heart failure (HF) patients, patients and their caregivers (CGs) should participate in symptoms assessment. This study aimed to assess the agreement between HF patients and...
The Prevalence, Subtypes and Obstetric Risk Factors of Urinary Incontinence in Reproductive Age Women Referred to Community Health Care Centers of Dezful, Iran- 2015
Background: Urinary incontinence (UI) is a common health problem and has a profound effect on the quality of life and psychosocial aspects of the affected women. The aim of this study was to investigate the prevalence an...
The Relationship of Socio-Demographic Factors, Fertility Behavior and Child’s Perceived Value with Fertility Intention of Women in a Region in the East of Iran
Background: Fertility intention is one of the strongest predictors of couple’s fertility behavior that is affected by many variables. This study aimed to identify the relationship of socio-demographic factors, fertility...
Factors Affecting the Place of Delivery among Mothers Residing in Jhorahat VDC, Morang, Nepal
Background: In Nepal, the maternal mortality ratio is 281 per thousand live births, among which 40% mortality occurs during home delivery. Home delivery increases the risk of maternal and neonatal mortality and morbidity...
Changes in Daily Life of Iranian Patients with implantable Cardioverter Defibrillator: A Qualitative Study
Background: Although Implantable Cardioverter Defibrillator (ICD) saves the life of patients with life-threatening ventricular dysrhythmias, it causes various challenges in their life span. Considering the increase in th...