Challenges in Palliative Care Research: Experience from a Randomized Controlled Trial in Refractory Cancer Cachexia
Journal Title: Palliative Medicine & Hospice Care – Open Journal - Year 2015, Vol 1, Issue 2
Abstract
There is a paucity of research studies in palliative care with less than 1% of clinical trials being relevant to the hospice and palliative care setting.1 Difficulties in conducting studies with this client group such as recruitment, retention, methodological and ethical issues are well documented within the literature.1,2-6 Nonetheless, conducting research with palliative populations is necessary to ensure the development of evidence based policies and services which reflect and respond to the needs of this vulnerable and often underserved population. Previous research has demonstrated that palliative care patients7,8 and their families9 are willing to be involved in palliative care research and the onus to conduct high quality rigorous research with this client group lies with researchers.10 It is only through actively engaging in research with the palliative population that we can build an evidence base that will contribute to the development of evidence based policies, protocols and treatments and allow health care professionals to consistently respond to palliative patients and their families in order to maximise their quality of life as they approach the end of their lives.
Authors and Affiliations
Joanne Reid
Initial Impressions and Review of Literature Concerning Factors Affecting the Use of Palliative Care Assessment Tools in an African Setting
Introduction: Quality palliative care encompasses early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.1 Despite the importance of symptom assessme...
Inter-Professional High Fidelity Simulation: The Way Forward for End-of-Life Care Education
Providing high quality care for dying patients and their families has been highlighted as a national priority in the United Kingdom (UK)1 with national guidelines and policies existing to provide direction specific to th...
Cultural Challenges in Implementing Palliative Programs in Emerging Countries
Clinical approach of palliative care is beneficial during an individual’s journey with illness, and can be utilized through many care settings by all members of the health care team. Many complex cultural issues can affe...
Role of Steroids in Malignant Bowel Obstruction
Various cancers such as ovarian, stomach, colon or pancreas may present with mechanical bowel obstruction. This may be partial or total depending on the pathology and extent of the disease. On presentation, the patient r...
Assessing Advance Care Plan Discussions in Hospice Day Care
Background: Advance care planning (ACP) is a voluntary discussion between an individual and their care providers. The primary purpose is to identify and document a person’s wishes and preferences for future care. Method:...