CHILD’S COMPETENCES IN CHRONIC ILLNESS: When you become ill. Children’s competencies in ‘disrupted normality’ caused by chronic illness. Contribution for the issue ‘Children competences about chronic illness’
Journal Title: Miscellanea Anthropologica et Sociologica - Year 2017, Vol 18, Issue 3
Abstract
This article presents the findings from a research study that analysed children’s competencies in health and disease state management. It compared children’s perspectives (8 and 12 year-old subjects: some chronically ill with asthma or type 1 diabetes and others free from these specific pathologies) with the views of their adults/caregivers (parents and doctors). We discuss the competencies children use to ‘normalise’ (Strauss 1975) their chronic disease experience, with particular reference to those present at the beginning of the patient’s career. The data show a rich and diverse variety of relational and biomedical competencies that even the youngest children employ along the diagnostic path, considering themselves to be conscious actors who are able to perceive the transformations of their body and to report them to their parents and doctors. ‘Normality disruption’ is experienced by children as the introduction of a discontinuity in their relational life with peers because they observe that the disease makes them different from other children, whereas the adults perceive it as a real ‘turning point’; one that is more dramatic in the case of diabetic patients. Biomedical competencies owned by children are considered strategic by adults and more important than relational competencies.<br/><br/>
Authors and Affiliations
Stefania Fuccii, Anna Favretto, Francesca Zeltron
Keywords
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