CHILD’S COMPETENCES IN CHRONIC ILLNESS: When you become ill. Children’s competencies in ‘disrupted normality’ caused by chronic illness. Contribution for the issue ‘Children competences about chronic illness’

Journal Title: Miscellanea Anthropologica et Sociologica - Year 2017, Vol 18, Issue 3

Abstract

This article presents the findings from a research study that analysed children’s competencies in health and disease state management. It compared children’s perspectives (8 and 12 year-old subjects: some chronically ill with asthma or type 1 diabetes and others free from these specific pathologies) with the views of their adults/caregivers (parents and doctors). We discuss the competencies children use to ‘normalise’ (Strauss 1975) their chronic disease experience, with particular reference to those present at the beginning of the patient’s career. The data show a rich and diverse variety of relational and biomedical competencies that even the youngest children employ along the diagnostic path, considering themselves to be conscious actors who are able to perceive the transformations of their body and to report them to their parents and doctors. ‘Normality disruption’ is experienced by children as the introduction of a discontinuity in their relational life with peers because they observe that the disease makes them different from other children, whereas the adults perceive it as a real ‘turning point’; one that is more dramatic in the case of diabetic patients. Biomedical competencies owned by children are considered strategic by adults and more important than relational competencies.<br/><br/>

Authors and Affiliations

Stefania Fuccii, Anna Favretto, Francesca Zeltron

Keywords

Related Articles

Uwikłani w płeć” – od wytwarzania i reprodukowania męskości po formy przekraczania płci: Osoby interpłciowe: praktyki medyczne,ruch społeczny i problem trzeciej kategorii płciowej

Autorka prezentuje dane medyczne, psychologiczne i społeczne na temat osób interpłciowych oraz dyskutuje problem trzeciej kategorii płciowej. Osoby interpłciowe to osoby, które urodziły się z dwuznacznymi genitaliami, go...

Governmentality i co dalej?: Rządomyślność w przestrzeni szkoły – przykład realizacji projektu mediacji rówieśniczych

Celem niniejszego artykułu jest próba spojrzenia na projekt mediacji rówieśniczych realizowanych w szkolnej przestrzeni, przez pryzmat Foucaultowskiej kategorii rządomyślności. Podstawą jest założenie, iż użycie tego kon...

ROLA I ZNACZENIE MEDIÓW W PROMOWANIU ZDROWEGO STYLU ŻYCIA: Bezsenność starszych osób w Europie

The aim of the paper is to show the role of the Internet in creating and shaping these types, elements and characteristics of social capital, which affect the health of the population. How social capital is created for h...

Download PDF file
  • EP ID EP250016
  • DOI -
  • Views 62
  • Downloads 0

How To Cite

Stefania Fuccii, Anna Favretto, Francesca Zeltron (2017). CHILD’S COMPETENCES IN CHRONIC ILLNESS: When you become ill. Children’s competencies in ‘disrupted normality’ caused by chronic illness. Contribution for the issue ‘Children competences about chronic illness’. Miscellanea Anthropologica et Sociologica, 18(3), 24-49. https://europub.co.uk/articles/-A-250016