DATA QUALITY AT THE NORTHEASTERN IRANIAN LIVER TRANSPLANT REGISTRY: AN OVERVIEW OF CONSISTENCY, SPARSENESS, AND TIMELINESS
Journal Title: Acta HealthMedica - Year 2017, Vol 2, Issue 6
Abstract
Introduction: Due to the prevalence of viral and non-viral hepatic disorders, multiplicity of factors involved in clinical decisions, the need for long-term surveillance of transplant recipients, and continuous prioritization of patients on the waiting list, employing a registry system is considered as a contributory factor to the effective delivery of clinical and scientific objectives. This study is directed to quantify the quality of the first bulk of data entered into our province-wide electronic web-based liver transplant registry system. Methods: Patients diagnosed with cirrhosis or underwent liver transplant were subjected to this registry from 2013 to 2016. Five and seven inter-record consistency criteria were defined to assess gender, date, and etiological consistency of pre- and post-operation data, respectively and 42 socio-demographic, clinical history, laboratory, imaging, and consultation variables were selected randomly to represent the sparseness of the database. The timeliness was interpreted as the median time from diagnosis to complete registration for each particular patient. Results: A total of 540 patients accounting for 124 liver transplant recipients and 416 cirrhotic patients were registered during the initial four years. Data consistency was in the range of 89-100% and sparseness varied between 0.2-20.9%. The median time between diagnosis and registration was 21 days, and this trend appears to be stable over time. Conclusion: The preliminary appraisal of the database represents the acceptable level of data quality. Embedding required, validation, and consistency check rules following auto-completion feature within structured forms have facilitated and accelerated the data entry process. It is noteworthy that the coding and classification systems follow international standards, and this database is linkable to any national database. We propose to offer the provided database as a rich repository of data to researchers aiming to facilitate data collection process and improve future studies with regards to qualitative and quantitative scientific measures
Authors and Affiliations
Tohidinezhad F, Aliakbarian M, Akhavan Rezayat K, Hosseini MR, Eslami S
Keywords
Related Articles
- EP ID EP351568
- DOI 10.19082/ah169
- Views 112
- Downloads 0
ASSESSMENT OF DETERMINANTS FOR NEONATAL MORTALITY RISK PREDICTION DECISION SUPPORT SYSTEM
Introduction: In recent years, many decision-making systems have been proposed for neonatal intensive care units, were the high-risk neonates are taken care of. Hence, using these tools helped to decrease neonatal mortal...
GENETIC EPIDEMIOLOGICAL CHARACTERIZATION OF THE POPULATION OF GHAZAOUET, WILAYA OF TLEMCEN (WEST ALGERIA) BY OBESITY
Background: Obesity is the first non-infectious disease in history. It is a real epidemic that affects both industrialized and developing countries. In Algeria, the problem of obesity is currently a major public health c...
THE ROLE OF MOBILE HEALTH IN THE HEALTH CARE SYSTEM
Introduction: This section is a brief summary of the Introduction of the article. It may consist of three short sentences, with the first sentence specifically mentioning the core content, the second its context, i.e., t...
GLANCING OF CANCER REGISTRY SURVEILLANCE SYSTEM IN IRAN
Introduction: Currently, more than 25 million people worldwide are living with cancer each year. Additionally, more than 11 million people are diagnosed and 7 million deaths from cancer will occur. It is anticipated tha...
DEVELOPMENT OF AN ASSESSMENT METHOD FOR CHRONIC DISEASE MOBILE HEALTH APPLICATIONS
Introduction: According to the substantial growth of mobile health applications in all aspects of health in the last decade, an mHealth app assessment has become more important for developers. On the other hand, the incr...