Determinants of developing a pilot of coordinated care model for patients with multiple sclerosis in Poland
Journal Title: Medical Science Pulse - Year 2019, Vol 13, Issue 2
Abstract
Background: Multiple sclerosis is a chronic and highly debilitating disease with very high economic and social consequences. Designing changes to improve the functioning of the healthcare model primarily requires learning about the needs of beneficiaries. Aim of the study: The purpose of our study is the results’ description and summary of conclusions of the research conducted in the past years. These results are currently being used for the construction of a coordinated care model for MS patients. Material and methods: One questionnaire survey addressed to MS patients, carried out between 01.12.2013 and 01.02.2014 and the second one addressed to Polish and European medical professionals, carried out between 01.09.2016 and 04.10.2016 performed in 51 European centers and 2 branches of the Turkish Association of patients with MS. Results: In the first survey 84.4% patients declared that during the illness they received mental support mostly from their family: 48.5% received it from physicians; 42.1% from a nurse. 64.8% of the respondents declared that they received no support from social organizations and 77.6% received no support from religious organizations. According to the results of the survey for healthcare professionals in Poland and Europe, in 54.9% of the European institutions and in 22.4% of the Polish institutions, dedicated IT systems are used for processing MS patients’ data. Among institutions using IT, 52.9% of the European and 10.1% of the Polish ones keep the patient’s entire documentation, as well as a patient satisfaction survey, in an IT system. Conclusions: Based on our studies described above, the patients’ needs, resources and capabilities seem to indicate that the scale of system inefficiencies is such that remodeling care for this well-defined group of patients is justified and feasible.<br/><br/>
Authors and Affiliations
Katarzyna Wiktorzak, Sylwia Szafraniec-Byryło, Urszula Jaworska, Melania Brzozowska, Waldemar Wierzba, Andrzej Śliwczyński, Donata Kurpas
Keywords
Related Articles
- EP ID EP518328
- DOI 10.5604/01.3001.0013.0543
- Views 135
- Downloads 0
Health-related behavioural differences between the sexes determines nutrition status in hospitalized elderly patients/ Różnice behawioralne związane z zachowaniami zdrowotnymi między płciami, determinujące stan odżywienia u hospitalizowanych pacjentów w podeszłym wieku
<b>Background:</b> Health-related behaviours affect the preservation and maintenance of health. They form a important part of the everyday life of all individuals including the elderly. Some of the most significant facto...
The challenging path to establish general practice in an academic environment – the case of the Czech Republic
The academic development of general practice (GP) within countries of Central and Eastern Europe began only after the political changes in the 1990s. From a research perspective GP has a reputation for being amongst the...
Recent advances in computational chemistry for identification of ligands for biological receptors: interdisciplinary aspects
Background: Computational (in silico) methods, such as quantitative structure-activity relationships (QSARs) are already well recognized and used in many screening programs related to environmental, industrial and medica...
Knowledge of neurologists and gynaecologists regarding reproductive and maternity issues in women with epilepsy
Background: Epilepsy is one of the most common neurological disorders, with more than 400,000 individuals in Poland (about 1% of the population) affected. Epilepsy complicates approximately 0.5% of pregnancies. Objectiv...
Poziom wiedzy mężczyzn na temat raka jądra
Wstęp: Wśród nowotworów męskiego układu moczowo-płciowego rak jądra występuje w ok. 2% przypadków nowotworów u mężczyzn i jest jednym z „najmłodszych” guzów. Niewiedzę na jego temat potwierdzają badania statystyczne. Cel...