Disease specific knowledge about cystic fibrosis, patient education and counselling in Poland
Journal Title: Annals of Agricultural and Environmental Medicine - Year 2014, Vol 21, Issue 2
Abstract
introduction and objective. The presented study assesses levels of specific knowledge of the disease among cystic fibrosis (CF) patients and their families, and evaluates the effectiveness of a targeted, disease specific education programme. materials and methods. A cross-sectional survey among 462 families with a CF child evaluated their knowledge of the disease. A one year follow up survey among 200 families assessed the effectiveness of an educational programme developed to correct gaps, errors and misconceptions identified in the previously administered survey. Self-administered, comprehensive, 5-domains, 45-item multiple-choice CF Disease Knowledge Questionnaire (CFDKQ) was anonymously completed by 462 subjects. results. 228 respondents were male (49%), 234 female (51%). The level of disease-specific knowledge in the age groups 0–6 and 7–10 years, was significantly higher than in 11–14 and 15–18 years of age groups (p<0.005). General medical and Genetics/Reproduction knowledge was low in all patients. Significant predictors of patient and parental knowledge were age and domicile. Patients and parents rely heavily on doctors for information about CF (77%). The follow-up survey (CFDKQ) emphasized that special education programmes significantly improved levels of disease specific knowledge (p<0.0001). conclusions. If left uncorrected, the misconceptions, gaps and errors in CF knowledge identified in the presented study could result in inadvertent non-adherence to treatment, and impact on the progression and outcome of the disease. Secondly, the results demonstrate the effectiveness of targeted, disease specific information in improving disease knowledge of CF patients and their families, and highlights the value and need for the development of educational programmes for chronically ill patients and their families.
Authors and Affiliations
Sławomir Chomik, Beata Klincewicz, Wojciech Cichy
Keywords
Related Articles
- EP ID EP80806
- DOI -
- Views 105
- Downloads 0
Neuropsychological rehabilitation for traumatic brain injury patients
The aim of this review is to discuss the basic forms of neuropsychological rehabilitation for patients with traumatic brain injury (TBI). More broadly, we discussed cognitive rehabilitation therapy (CRT) which constitute...
Physical activity of Poles – Critical analysis of research 2010–2014
The aim of the study was an analysis of research on the physical activity (PA) carried out among Poles from 2010 – 2014 on a national scale. The obtained results concerning PA and recommended levels of PA, in particular...
Influence of prenatal physical activity on the course of labour and delivery according to the new Polish standard for perinatal care
Introduction. Prenatal physical activity has been increasingly recommended in recent years as the fundamental condition of physiological pregnancy and birth by health promoting organizations throughout the world. Objec...
Occupational acquisition of methicillin-resistant [i]Staphylococcus aureus[/i] in humans – A description of MRSA carrier and infected cases from the Region of North Jutland in Denmark
Since 2006 in Denmark, there has been a statutory order on physicians’ notification of methicillin-resistant Staphylococcus aureus (MRSA). Occupational cases notified in North Denmark Region in 2008 and 2009 were analyse...
First case of human granulocytic anaplasmosis from Slovakia.
In order to evaluate the potential risks of human granulocytic anaplasmosis in Slovakia, blood and serum samples of hunters and foresters from the northern parth of Slovakia were tested. We present the first case of HGA...