Quality of life assessment for children with sickle cell disease (SCD) in Mecca region
Journal Title: International Journal of Medical Science and Public Health - Year 2016, Vol 5, Issue 5
Abstract
Background: Sickle cell disease (SCD) is an autosomal recessive condition characterized by production of abnormal hemoglobin S and is related to high morbidity and mortality. It also affects the quality of life (QOL) of patients and their relatives/caregivers. Objective: To assess QOL for children with sickle cell anemia. Materials and Methods: This descriptive study was conducted in pediatric hematological departments in selected hospitals at Makkah Al-Mukarramah. A purposive sample composed of 40 pediatric children with SCD with their mothers was involved in this study according to specific criteria. Different questionnaires were used for data collection. Result: The most commonly affected age group was of 10–12 years, with boys more involved in the disease. It was found that most of the children always found hard to take a shower, do chores around the house, and do sports. It was also found that children with sickle cell anemia always felt afraid or scared. It was clear that the majority of the children with SCD were always facing problems such as other children did not want to be their friends, having trouble getting along with kids, and other kids tease them. Children always have trouble keeping up with the schoolwork. Overall, all the parameters of QOL are affected in the children with SCD, particularly physical and social well-being. Conclusion: Most of the subcategories of the QOL, and physical, social, emotional, and school well-being were affected by SCD. There must be adequate measures included in standard treatment guidelines for SCD to improve QOL in children with SCD.
Authors and Affiliations
Emad Abdulaziz Alharbi, Roa’a Faiz Alamri, Ebtisam Saud AlJerayan, Hadeel Suliman Salawati, Shroog Mohammad Al- Mjershi
Keywords
Related Articles
- EP ID EP106935
- DOI 10.5455/ijmsph.2016.29122015310
- Views 105
- Downloads 0
Prevalence of diabetes mellitus in rural population of district Sonepat, India
Background: Both rural and urban areas in India are currently experiencing a great spurt in lifestyle diseases such as diabetes mellitus, hypertension and ischaemic heart disease. The shift in epidemiology from co...
Histopathological study of Round Cell tumors - A retrospective study
Background: Round Cell Tumors are heterogeneous malignancy featuring primitive undifferentiated small cell morphology. Small round cell tumors mostly occur in children, adolescents, and young adults. Because of their sig...
Histopathological interpretation of endometrium in abnormal uterine bleeding
Background: Abnormal uterine bleeding is one of the most frequent problems in life of an adult female. Accurate analysis of endometrium & localization of intrauterine lesion is the goal to effective management &...
Clinical and genetic association of insulin growth factor-2 gene in diabetes mellitus among south Indian population
Background: Type 2 diabetes mellitus (T2DM) is characterized by insulin resistance, abnormally elevated hepatic glucose production, and reduced glucose-stimulated insulin secretion. Objective: The aim of this study was t...
Prevalence of water borne diseases and wash practices in rural and urban population of Chennai
Background: Poor water and sanitation facilities unequally affect women and girls. More than 30% of marginalized women are violently assaulted every year as the lack of basic sanitation forces them to travel long distanc...