Self-actualization of Parents of Children with Duchenne Muscular Dystrophy
Journal Title: Niepełnosprawność - zagadnienia, problemy, rozwiązania - Year 2018, Vol 0, Issue 27
Abstract
Duchenne muscular dystrophy (DMD) is a rare genetic disease that causes a gradual loss of muscle function and other body tissues. It is mainly boys who suffer from it, and symptoms have been manifested since about 3 years of age. Having a child with a disability is quite a challenge for his parents. Their daily life is accompanied by fear, anxiety, helplessness and sadness. A study was carried out to analyze the self-actualization of parents of children with DMD (n=30) who were compared with parents of healthy children (n=30). The result shows that parents of children with DMD have a lower overall level of self-actualization than the parents of healthy children. They differ the most in relation to other people and self-expression. The results accurately reflect the situation of these families and the specificity of the disease. They are also a starting point for the possibilities offered to parents to deal with this situation and possible therapeutic interactions.
Authors and Affiliations
Paulina Anikiej, Arkadiusz Mański, Mariola Bidzan
Keywords
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