The nursing options of health visitors in families bringing up children with autism
Journal Title: New Medicine - Year 2011, Vol 15, Issue 1
Abstract
Present results are part of an overall exploratory research dealing with the quality of life in the families bringing up children with autism, which aims to support the effectiveness of health visitor nursing care. Objective. Our goal is to reveal the demographic situation and health care of the families, which can be the basis of a professional guideline for health visitors and professional nurses. Method. After finding the families bringing up children with autism part of the present research uses the data of the National Autism Research (OAK) made by the Jelen (Present) Institute, as well as its own focus group interviews. The tool of the written interview was applied by OAK, which could be implemented through a questionnaire sent by post. The qualitative data collection occurred in three focus groups (parents, autism specialists and health visitors), some elements of which are described in the study. Result. There are several hundred families caring for autistic children/adults in Hungary. In our research 276 families caring for children between 3-18 were highlighted. No similar socio-demographic background can be recorded among them, all of them have to face many challenges with a very little help. They have different expectations towards the health care professionals caring for them. Deduction. There is no comprehensive strategy for the problems of the families with autistic children neither on a national nor on a regional level. The regular operation of parents’ groups is a task needing to be solved at a local level. Because of the lack of knowledge among health care professionals, our goal is to build a comprehensive training system.
Authors and Affiliations
Orsolya Tobak
Keywords
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