Thrombocytopenia Symptoms and their Impact on Patients Daily Activities assessment Vignette (TSIDAV) – validation of the vignette
Journal Title: JOURNAL OF HEALTH POLICY & OUTCOMES RESEARCH - Year 2016, Vol 9, Issue 1
Abstract
Objective: Our aim was to validate the TSIDAV vignette in thrombocytopenia patients. Methods: The vignettes validation was performed during a study on adults and children with thrombocytopenia. The data were collected among Lublin hospital patients within the period from1st March to 30th April 2016. Results: We have validated the vignette based on the 61 questionnaires collected among thrombocytopenia patients and children’s caregivers. 31 vignettes were from female patients, 17 from male patients and 13 from children’s caregivers. The most frequently mentioned symptom influencing daily activities in all groups was petechiae and easy bruising. Among men 29% declared it as significant, 68% of women also considered petechiae on their skin and mucosa as having significant impact on their daily activities and 65% declared a significant impact of easy bruising. Among parents and caregivers 62% of them also indicated petechiae as having significant impact on their daily lives and 54% also declared significant easy bruising. We have used a developed special scale for the numerical presentation of the obtained results allowing their interpretation. Conclusions: The properties of the vignette make it appropriate to assess the impact of the thrombocytopenia symptoms on patients daily activities. TSIDAV and its dual construction lets us collect the catalogue of different symptoms of thrombocytopenia and their impact of daily life, which could be very helpful in working with thrombocytopenia patients from the psychological and medical point of view.
Authors and Affiliations
Mariola Drozd, Monika Szkultecka-Dębek, Marta Bem, Nina Wiśniewska, Joanna Mazur
Mepolizumab: a new drug programme for patients with severe eosinophilic asthma
Biological treatment involves more and more fields of medicine. This also applies to severe asthma for which a therapy with omalizumab (anti-IgE antibodies for patients with allergic asthma) has been available since 2013...
Idiopathic Pulmonary Fibrosis as a Challenge for the Polish Healthcare System
Idiopathic pulmonary fibrosis (IPF) is a rare disease characterised by age-dependent incidence, unclear aetiology and progressive course. Given the complexity of the diagnostic pathway and limited therapeutic options, an...
Approach to uncertainty in health technology assessment in a Central and Eastern European country: appraisal of cancer drugs by a Polish HTA agency in presence of high crossover rates in clinical trials
Background: Health technology assessment (HTA) plays an important role in reimbursement decision making in Poland and its principles are similar to those used in other countries. However, specific inter-country differenc...
What should we know about the Zika virus?
Zika virus (ZIKV) is a vector-borne arbovirus of the Flaviviridae family, which also includes dengue, West Nile, yellow fever and Japanese encephalitis viruses. It is transmitted by daytime-active Aedes mosquitoes. Simi...
Visualisation of the results of sequence analysis with the use of Sankey diagrams, based on prevalence analysis of selected medical problems in the years 2013-2015 in Poland
Introduction. The goal of the study is to assess the usefulness of Sankey model in the analysis of healthcare phenomena. Material and methods. Sequence analysis and Sankey model generation was based on the data provided...