Thrombocytopenia Symptoms and their Impact on Patients Daily Activities assessment Vignette (TSIDAV) – validation of the vignette
Journal Title: JOURNAL OF HEALTH POLICY & OUTCOMES RESEARCH - Year 2016, Vol 9, Issue 1
Abstract
Objective: Our aim was to validate the TSIDAV vignette in thrombocytopenia patients. Methods: The vignettes validation was performed during a study on adults and children with thrombocytopenia. The data were collected among Lublin hospital patients within the period from1st March to 30th April 2016. Results: We have validated the vignette based on the 61 questionnaires collected among thrombocytopenia patients and children’s caregivers. 31 vignettes were from female patients, 17 from male patients and 13 from children’s caregivers. The most frequently mentioned symptom influencing daily activities in all groups was petechiae and easy bruising. Among men 29% declared it as significant, 68% of women also considered petechiae on their skin and mucosa as having significant impact on their daily activities and 65% declared a significant impact of easy bruising. Among parents and caregivers 62% of them also indicated petechiae as having significant impact on their daily lives and 54% also declared significant easy bruising. We have used a developed special scale for the numerical presentation of the obtained results allowing their interpretation. Conclusions: The properties of the vignette make it appropriate to assess the impact of the thrombocytopenia symptoms on patients daily activities. TSIDAV and its dual construction lets us collect the catalogue of different symptoms of thrombocytopenia and their impact of daily life, which could be very helpful in working with thrombocytopenia patients from the psychological and medical point of view.
Authors and Affiliations
Mariola Drozd, Monika Szkultecka-Dębek, Marta Bem, Nina Wiśniewska, Joanna Mazur
Keywords
Related Articles
- EP ID EP192261
- DOI 10.7365/JHPOR.2016.1.7
- Views 56
- Downloads 0
Cost-effectiveness analysis of methods of diagnosis of tb infection in russian regions by use of recombinant tb allergen in children and adolescents
Background. Russia is among the countries with a high burden of TB. A new diagnostic method for TB has been developed, called ‘recombinant tuberculosis allergen’ or RTA (Diaskintest®), which has a similar cost and method...
The access to an ophthalmic treatment in Poland on the example of the ocular complications in the course of diabetes mellitus
Background Diabetic Retinopathy (DR) is the severe disease, that develops as a result of diabetes complication. All diabetic patients are at risk of DR development and the National Health Fund (NHF) estimates that ther...
What should we know about the Zika virus?
Zika virus (ZIKV) is a vector-borne arbovirus of the Flaviviridae family, which also includes dengue, West Nile, yellow fever and Japanese encephalitis viruses. It is transmitted by daytime-active Aedes mosquitoes. Simi...
The combination of angiotensin converting enzyme inhibitors, diuretics and non-steroidal anti-inflammatory drugs in the routine community pharmacy settings in Poland: The unrecognized problem of ‘Triple Whammy’. A pilot analysis.
Background: ‘Triple Whammy’ defined as a combination of angiotensin converting enzyme inhibitors/angiotensin receptor antagonist, diuretics and non-steroidal anti-inflammatory drugs remains an important clinical problem,...
RWE in Europe – An Analysis
Background – This paper outlines findings from four roundtable discussions involving a number of stakeholders. They aimed to improve understanding of the use of real world evidence (RWE) across Europe. They focused on th...