Caring of children with special health care needs: challenges to families and pediatric nursing

Journal Title: Revista Eletronica de Enfermagem - Year 2009, Vol 11, Issue 3

Abstract

Children with special health care needs (CSHN) demand continuous and complex special health care at home. Qualitative research was applied to describe and discuss the challenges determined for these caring to CSHN’s caregivers at home. Four female caregivers of the CSHN in a room-in at teaching hospital in the southern Brazil on December of 2004 were interviewed and participated in group dynamics of the creative-sensitive method. And charts of these children were analyzed. French discourse analysis was applied to the empirical data. The caregivers unveil the complex nature of the CSHN’S care and the relevance to do that based on knowledge and practices which are no included in their existential daily life. This caring was characterized as a survival care, (super) natural and singular due to it complexity, high demand and dedication. As a priority, all care actions were in order to preserve of the child’s life. In conclusion, it is necessary to include these relative caregivers in the nursing care, aiming to amplify the negotiation power of these women beyond the survival of them. In this way, the CSHN present challenges to pediatric nursing due to care demands in different sceneries such as hospital, family and community.

Authors and Affiliations

Eliane Neves, Ivone Cabral

Keywords

Related Articles

Perfil de pacientes submetidos à cirurgia de revascularização miocárdica:<br /> implicações para o cuidado de enfermagem<br />

A gravidade dos pacientes submetidos à cirurgia de revascularização do miocárdio (RM) tem aumentado consideravelmente nas últimas décadas. O objetivo deste estudo de coorte contemporâneo foi identificar o perfil clínico...

Medida da ansiedade e depressão em pacientes no pré-operatório de cirurgias eletivas

Os procedimentos cirúrgicos aliados à hospitalização representam uma ameaça ao doente e sua família, devido às alterações físicas, reações psicológicas e sociais. Este estudo foi realizado com o objetivo de avaliar a pre...

Health belief model and HIV vulnerability: perceptions of adolescents in Fortaleza-CE

The advent of AIDS for over 25 years in epidemiological setting in the world brings the discussion about sexual behavior, beliefs and values. Among the models and theories that help in understanding the risk exposure to...

Avaliação do conhecimento dos estudantes de enfermagem sobre sepse

O objetivo deste trabalho foi avaliar o conhecimento dos estudantes do último ano de graduação em Enfermagem, de uma Escola de Enfermagem do interior do estado de São Paulo, sobre a síndrome da resposta inflamatória sist...

Associations of people with chronic condition: the policy as a strategy for the construction of citizenship

In Brazil, the experience of chronic condition, mainly for people affected by limitations and disabilities, is marked by a history of challenges and sufferings when seeking care for their needs. The nursing is aware of t...

Download PDF file
  • EP ID EP97044
  • DOI -
  • Views 116
  • Downloads 0

How To Cite

Eliane Neves, Ivone Cabral (2009). Caring of children with special health care needs: challenges to families and pediatric nursing. Revista Eletronica de Enfermagem, 11(3), 527-538. https://europub.co.uk/articles/-A-97044