CHILD’S COMPETENCES IN CHRONIC ILLNESS: Type 1 diabetes and its treatment: An arena for the expression of children’s competences
Journal Title: Miscellanea Anthropologica et Sociologica - Year 2017, Vol 18, Issue 3
Abstract
Chronic illness can be seen as a frightening and uncertain experience, particularly when it affects children. In this situation and in the continuity of social representations concerning childhood, children are mainly considered as ‘mute bodies’ in need of adults’ constant monitoring and surveillance. Their participation in their own care is thus reduced to a minimum, since children are seen as incompetent, compliant and passive. From an exploratory study made in France with children aged 6 to 12, living with type 1 diabetes and their parents, children’s competences regarding their treatment and its administration were questioned. This article presents some results of this research concerning three types of competences which have been observed in children: (1) the interpretation of physical sensations and their translation into symptoms communicable to others; (2) the performance of technical gestures utilizing medical devices (testing the sensations by dextrose, delivering insulin by bolus or injections, changing the infusion set) which also requires the ability to determine the ‘right’ time and the ‘right’ people to turn to depending on the situation; (3) the ability to judge and to adjust their behaviour which is particularly observable in the way children handle the therapeutic regimen.<br/><br/>
Authors and Affiliations
Lydie Bichet
Keywords
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