Evaluation of Quality of Life in Juvenile Idiopathic Arthritis Using Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
Journal Title: Journal of Medical Science And clinical Research - Year 2018, Vol 6, Issue 8
Abstract
Objective: To evaluate the quality of life in children diagnosed with JIA using juvenile arthritis multidimensional assessment report (JAMAR) Methods: The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extra - articular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The questionnaire was applied to 44 children who attended the pediatric rheumatology clinic in Alexandria University Children’s hospital, Egypt. The questionnaire was repeated to all patients after 6 months Results: Results of this study revealed that the JAMAR questionnaire was valid, reliable and sensitive to change of the disease activity The JAMAR provided thorough information for the study patients about recent medical history and current health status. Conclusion: Integrating patient reported outcome measures into standard clinical practice is feasible and applicable. Development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA.
Authors and Affiliations
Hussein Z
Ocular Manifestations in Chronic Renal Failure Patients
The study was done during a period of two years from november 2011 to September 2013 on 200 consecutive patients who were admitted to the nephrology ward, Kurnool medical college, Kurnool and met the inclusion and exclus...
Laparoscopic Evaluation of Tubal Factor in Infertility
Background: Tubal factor infertility accounts for approximately 25-35% of cases of female infertility. The evaluation of the fallopian tube is necessary to determine the management plan for infertility. Tubal patency can...
Significance of Adenosine Deaminase Levels in Diagnosis of Pleural Effusion
The present study was carried out in 71 patients in a tertiary care center with an aim to study the correlation of results of ADA test and lymphocyte proportion with clinical / radiological findings and results of other...
A Study on Cardiac Manifestations of Dengue Fever
Aims and Objectives: To study the cardiac manifestations of the dengue fever. Method: This two year descriptive study was undertaken at Darbhanga Medical College and Hospital, department of medicine, Darbhanga, Bihar. 50...
Acquired Neurogenic Heterotopic Ossification Following Treatment for ADEM: A Case Report and Literature Review
Introduction: Heterotopic ossification (HO) is the aberrant formation of ectopic bone within the soft tissues, of which the etiology is usually either traumatic or neurogenic. Neurogenic HO is a known but uncommon compli...