PROFILE, UNMET NEEDS AND STRESS AMONG CAREGIVERS OF TOTALLY BEDRIDDEN PATIENTS IN NORTH KERALA: A COMMUNITY BASED STUDY
Journal Title: Journal of Evolution of Medical and Dental Sciences - Year 2016, Vol 5, Issue 50
Abstract
Unmet needs of caregivers can lead to burden based on inadequacies in caregiver knowledge, lack of communication between patient, caregiver and service provider, lack of finances, physical, psychological and social problems of the caregiver, limited respite care options, lack of public awareness about caregiver issues and lack of technical training. METHODOLOGY A cross-sectional study was done among caregivers of bedridden patients receiving home-based care by the Palliative team of our college to assess their unmet needs and stress. RESULTS There were 104 caregivers of totally bedridden patients who participated, out of which 96% were women and 98% belonged to the low socio-economic group. Unmet needs like lack of recreation, sleep, total responsibility for the patient, insufficient money and no scope for respite care were seen in more than 50% of the caregivers. Most unmet needs were associated with physical stress while lack of recreation, being totally responsible and insufficient income was associated with social stress and lack of recreation with psychological stress. Impending death of the patient was a cause of mental stress among most caregivers irrespective of unmet needs. Lack of initial technical training (99%) was not associated with stress since communication exists between caregivers and the palliative team including a doctor. DISCUSSION Services to be aimed primarily at informal caregivers may be designed to increase the level of knowledge and emotional support of caregivers, provide relief from the unending burden of caring or provide financial benefits to those who take on this responsibility.
Authors and Affiliations
Usha , Binoo , Minimol , Jayasree
Keywords
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- EP ID EP138883
- DOI 10.14260/jemds/2016/747
- Views 102
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