‘Slow co-production’ for deeper patient involvement in health care
Journal Title: The Journal of Health Design - Year 2018, Vol 3, Issue 1
Abstract
“Slow co-production”, achieved by involving patients in in-depth research, can help deepen patient involvement in health care. Using our participatory qualitative research project, This Sickle Cell Life, as a case study, we describe how slow co-production offers a specific and mutually beneficial form of patient and public involvement and engagement (PPI/E). As well as generating in- depth qualitative data for researchers, slow co-production can generate high-quality, patient-centred knowledge to inform service improvement and to allow examination and reflection on the co-production processes and relationships themselves. All of these outcomes can deliver benefits for patients, their parents and carers, and health services.
Authors and Affiliations
Sam Miles, Alicia Renedo, Cicely Marston
The value of human connection in health care
The quality of the interaction between doctor and patient is what has the greatest bearing on the outcome in an individual case. Simple gestures such as asking more questions, interrupting less, remaining curious and mai...
Using patient complaints as a discovery tool
This editorial discusses the value of patients' complaints as a discovery tool in identifying planning defects and ongoing functional problems in clinics.
‘‘Out There’: Developing a transition pathway for adolescents and young adults with cancer using Experience-Based Co-Design.
Experience-based co-design (EBCD) was used in the adolescent and young adult (AYA) oncology setting to develop a transition pathway from hospital for young adults completing cancer treatment. The EBCD methodology provide...
RCTs in general practice: consider the influence of patient expectation on your recruitment strategy
Despite the focus on a common condition presenting frequently in general practice, our study failed to recruit the requisite numbers. The attrition rate was difficult to interpret. It is plausible that people presenting...
Power Up: Patient and public involvement in developing a shared decision-making app for mental health
Young people as active partners in the design of interventions is increasingly considered an integral part of research. In this project, young people were co-designers in a digital intervention for shared decision-making...