‘‘Out There’: Developing a transition pathway for adolescents and young adults with cancer using Experience-Based Co-Design.
Journal Title: The Journal of Health Design - Year 2018, Vol 3, Issue 1
Abstract
Experience-based co-design (EBCD) was used in the adolescent and young adult (AYA) oncology setting to develop a transition pathway from hospital for young adults completing cancer treatment. The EBCD methodology provides the opportunity to embed patient experience and input into service design. In this project staff and AYAs identified unmet needs and suggested working packages around psychological support, and provision of information about fertility, work, education, and relationships. Staff identified deficits in knowledge of survivorship issues for AYAs and interest in preparing AYAs for life after treatment.
Authors and Affiliations
Charlotte Weston, Louise Soanes, Julia Chisholm, Theresa Wiseman
Keywords
Related Articles
- EP ID EP365185
- DOI 10.21853/JHD.2018.42
- Views 130
- Downloads 0
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