The degree of disability in children with cerebral palsy and the quality of their rehabilitation and restrictions in the social life of their families
Journal Title: Rehabilitacja Medyczna - Year 2012, Vol 16, Issue 2
Abstract
Background: Cerebral Palsy is a complex of symptoms that lead to various degrees of limitation. The need for many years of care for such children and continuing treatment may place some families in a difficult situation and have an impact on their quality of life. It is also important to assess the quality of the treatment provided by parents and their perception of the child’s state and the resulting restrictions.Aim of work was to examine whether and to what degree limitations on the life of families of children with cerebral palsy depend on the actual state of the child, the quality of treatment and the perception of the state on the part of the parents. The spheres of family life that suffered the most were examined.Material and methods: Research included 109 families with children aged 3-18 years that were treated for cerebral palsy. A questionnaire- survey was used, in which were contained questions addressed to parents regarding the child’s state and its treatment. Restrictions on participation in social life in 6 areas of family life were evaluated by means of the LAQ-G questionnaire. The entirety of the results were statistically compiled using variant analysis with a one-way ANOVA classification (post hoc Scheffe test). An accepted level of p<0.05 was regarded as statistically significant for the whole test.Results: The treated group contained children with highly varied degrees of impairment. Opinions as to the quality of treatment were divided. The greatest limitations were noted in the sphere of social life, independence in unassisted actions and movement. From the responses, it appears that not all parents fully perceive the state and situation of their child in a realistic way.Conclusions: 1) Limitations on social life depend not only on the actual state of the child with cerebral palsy. 2) An assessment of possible limitations also depends on the parents’ perception of the child’s problems and treatment. 3) The most restricted spheres are independence in unassisted actions, interpersonal relationships and family social life.
Authors and Affiliations
Krzysztof Czupryna, Olga Nowotny-Czupryna, Janusz Nowotny
Keywords
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