Rares Diseases and Handicap: State of the Medical, Social and Health Policy in Developing Countries. Cameroon Case: About One Case: Cushing Disease
Journal Title: Journal of Clinical and Medical Research - Year 2020, Vol 2, Issue 1
Abstract
Rare's diseases and orphan's diseases, disability (orhandicap) are a reality throughout the world and a real public health problem in developing countries. The great precariousness in which the populations live increases their impact and their gravity by the absence of information, technical platform, means of detection, actual presence of research and clinical studies on these territories, lack of awareness of the detection, diagnosis, without forgetting that the means of care and prevention are sometimes in existent or little known and especially expensive in countries where the populations are poor, without mutual or social security as in industrialized countries. This work will focus on a patient case presenting a rare disease: Cushing's disease. A case that occurred in Cameroon in order to establish in a practical way this major and yet ignored, neglected issue in a health system with poor specialized structures, technical platforms, and without the support of the pharmaceutical laboratories that could with the health system of these poor countries set up a system of refueling in the sense of the social view the cost that requires the monitoring of these long pathologies that make autonomous living almost impossible, also life-threatening. In Cameroon, there have been difficulties in the care and monitoring of this young patient since childhood through the phase of the pubertal transition, adolescence, to adulthood. It is therefore important to organize the follow-up of these patients, by developing specific programs of medical follow-up, psychological care, and social integration programs. Health policies should invest in better support.
Authors and Affiliations
Carolle Laure Kpoumie*
Keywords
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- EP ID EP708384
- DOI https://doi.org/10.37191/Mapsci-2582-4333-2(1)-020
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